_thesideeffect_
Y - YOPD
YOPD. Sounds pretty cool, doesn't it? Well, it's not. But it did bring some cool things into my life, though. It changed me, not just...
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_thesideeffect_
Aug 29, 20223 min read
XX - It's about women
Ok so there's not that many words starting with X, but two X chromosomes make up the female sex, so I will use this post to write a...
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_thesideeffect_
Aug 15, 20223 min read
W- Work
Parkinson's has become one of the leading causes of disability worldwide. And I can totally see why. However, getting diagnosed when you...
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_thesideeffect_
Aug 14, 20221 min read
V - Vision
Surprise, surprise; another invisible symptom - Parkinson's can cause eye- and visual issues. The slowness or reduced movement associated...
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_thesideeffect_
Aug 9, 20223 min read
U - Urgent
After being diagnosed with Young Onset Parkinsons Disease, I was surprised that there was no sense of urgency. I was in a crisis. My...
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_thesideeffect_
May 23, 20222 min read
T - Tremor, tension, together
So, I don´t know if this is normal or not when you have a disease. That you become part of an amazing worldwide community of other people...
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_thesideeffect_
May 8, 20224 min read
S - Science, Sleep, Stress, Silvia
Science Let me first say I am amazed by all the people around the world who are dedicated to finding a cure for Parkinson’s. There are so...
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_thesideeffect_
May 8, 20221 min read
R - Rune & Rock Steady Boxing
R is for ROCK STEADY BOXING AND RUNE! @runevethe Rune was one of the first friends I made in the Parkinsons community. Rune was diagnosed...
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_thesideeffect_
May 8, 20221 min read
Q - Quiet Voice
Another less known symptom of Parkinson’s is decreased speech volume. Many people with Parkinson’s speak quietly and in a monotone pitch....
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_thesideeffect_
May 8, 20221 min read
P - Posture
P is for Posture. Parkinsons affects automatic movements like the brain’s reminder to stand up straight. It is therefore common to...
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_thesideeffect_
May 8, 20222 min read
O - On/Off
O for On/Off, of course… After the first couple of years of symptoms, the first trial and error finding the right meds, after accepting...
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_thesideeffect_
May 8, 20221 min read
N - Neurodegenerative
🧠🤯 The term neurodegeneration is a combination of two words - "neuro," referring to nerve cells and "degeneration," referring to...
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_thesideeffect_
May 8, 20221 min read
M - Melanoma
PD patients have an increased risk of developing melanoma. (skin cancer). Studies show that people who have PD not only have a higher...
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_thesideeffect_
May 8, 20221 min read
L - Lucky Left
Lucky me - my symptoms started on my left side. ✋🏼 Parkinsons usually starts on one side of the body (unilateral) but in later stages of...
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_thesideeffect_
May 8, 20221 min read
K - Kids
Young Onset Parkinsons is different from PD in many ways, and one of them is that many people who get Parkinsons early on still have...
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_thesideeffect_
May 8, 20222 min read
J is for Jules
Jules. One of my all time favourite people in the whole world. My amazing personal trainer. My neighbour and good friend. Jules magically...
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_thesideeffect_
May 8, 20221 min read
I - Insomnia
Insomnia More than 30% of people with parkinsons experience insomnia - either sleep-onset insomnia (primary insomnia) or sleep...
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_thesideeffect_
May 8, 20222 min read
H - Hydration & Hope
Two words starting with H - unrelated to each other, but both related to living with PD. 💦Hydration Proper hydration is fundamental for...
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_thesideeffect_
May 8, 20222 min read
G - Gait, Genetics, Gratitude
Gait 🚶🏻♀️Gait issues are one of the ways PD affects movement. It affects speed, rhythmicity, and symmetry. Walking is not something...
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_thesideeffect_
May 7, 20222 min read
F - Fluctuations, Fatigue, Future, Fear
As PD progresses it’s common to experience fluctuations also known as on/off time. I will cover the on/off phenomenon more in a later...
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