YOPD. Sounds pretty cool, doesn't it? Well, it's not. But it did bring some cool things into my life, though. It changed me, not just...

Ok so there's not that many words starting with X, but two X chromosomes make up the female sex, so I will use this post to write a...

Parkinson's has become one of the leading causes of disability worldwide. And I can totally see why. However, getting diagnosed when you...

Surprise, surprise; another invisible symptom - Parkinson's can cause eye- and visual issues. The slowness or reduced movement associated...

After being diagnosed with Young Onset Parkinsons Disease, I was surprised that there was no sense of urgency. I was in a crisis. My...

So, I don´t know if this is normal or not when you have a disease. That you become part of an amazing worldwide community of other people...

Science Let me first say I am amazed by all the people around the world who are dedicated to finding a cure for Parkinson’s. There are so...

R is for ROCK STEADY BOXING AND RUNE! @runevethe Rune was one of the first friends I made in the Parkinsons community. Rune was diagnosed...

Another less known symptom of Parkinson’s is decreased speech volume. Many people with Parkinson’s speak quietly and in a monotone pitch....

P is for Posture. Parkinsons affects automatic movements like the brain’s reminder to stand up straight. It is therefore common to...

O for On/Off, of course… After the first couple of years of symptoms, the first trial and error finding the right meds, after accepting...

🧠🤯 The term neurodegeneration is a combination of two words - "neuro," referring to nerve cells and "degeneration," referring to...

PD patients have an increased risk of developing melanoma. (skin cancer). Studies show that people who have PD not only have a higher...

Lucky me - my symptoms started on my left side. ✋🏼 Parkinsons usually starts on one side of the body (unilateral) but in later stages of...

Young Onset Parkinsons is different from PD in many ways, and one of them is that many people who get Parkinsons early on still have...

Jules. One of my all time favourite people in the whole world. My amazing personal trainer. My neighbour and good friend. Jules magically...

Insomnia More than 30% of people with parkinsons experience insomnia - either sleep-onset insomnia (primary insomnia) or sleep...

Two words starting with H - unrelated to each other, but both related to living with PD. 💦Hydration Proper hydration is fundamental for...

Gait 🚶🏻‍♀️Gait issues are one of the ways PD affects movement. It affects speed, rhythmicity, and symmetry. Walking is not something...

As PD progresses it’s common to experience fluctuations also known as on/off time. I will cover the on/off phenomenon more in a later...